A little Help for LIYA !!

My name is Liya, I am 1 and half years . I live with my parents in France.  My life was perfect until my 4 months birthday, when doctors found me a avery rare disease , which is called CDKL5 . It's  a very rare genetic disease, not very well known by people. Doctors told my parents that I will be poly-paralized , epileptic , that I could not speak or walk BUT i have faith and I hope something will be found to make my life better. My everyday is to fight to breath clearly , and to control my epilepsy the best as I can. I have to fight everyday to be able to live and to make my parents pride.  This disease is asking a lot of care and equiments to make Liya's life easier.  Special physiotherapie which is not recognized in France . One session cost 100 euros and she needs one every month .  Micro Kiné  , 50 euros for each session , every 2 months  Magnétiseur : 40 euros per session All the specialised equipments  : pushchair , medicalised bed, car seat , equipment for bathroom - etcc This equipement is not specially refund my Social care or sometime just a lille part. For example, the push chair for Liya cost 5000 euros , Social care can refund 960 euros and we are very grateful for that.    I need all your help , either in your prayers or by donating , even 1 euro , will make a difference.  If you have any questions, please do let me know  Auntie Linda