Melpo is suffering from Schwannomatosis. Schwannomatosis is an extremely rare genetic disorder that affects less than 1 in 1.7 million people and is responsible for the development of tumors called schwannomas to form on nerves on the spine and other peripheral nerves. Occasionally they may form in the brain as well.
Signs of Schwannomatosis occur at the age of 21 with schwannomas tumors located deeper inside her body on spine and right leg causing her chronic and debilitating pain, and disability issues. Melpo is the only patient with schwannomatosis in Cyprus. Unfortunately, schwannomatosis has no cure.She lives in pain daily, but she does not allow this pain to stop her from moving forward .She is a very self motivated,powerful and dynamic woman who always cares about her surroundings. Melpo is a biomedical engineer, PhD student, robotic teacher, NF ambassador, an enviromental volunteer and many more.
If you want to know more about her and what Schwannomatosis is ,here is a link from Melpo's tedx speech:
She has already had two surgeries at the age of 22 years old. Unfortunately, tumors appeared again. For the last three years, she is trying to travel to a specialist center for treatment because in her country there are no expertise doctors to do that.
She must go for surgery on the Department for Neurosurgery, University Hospital of Tuebingen, Germany. Travel there due to pandemic is extremely difficult, with a lot of expenses. The surgery costs 35 000 euros. Despite the fact that Cyprus governance covers a part of this, expenses like travel tickets (too expensive due to pandemic), PCR tests, accommodation, food, transportation, wheeling chair, other medical tests, the accompanying person expenses are not covered.
We aim to raise money for Melpo to give her a ''second'' chance, a chance for our hero, a true inspiration for all..making this tough journey a ''little bit easier'' and sending a message to her that "SHE IS NOT ALONE"..
Any donations of any amount will be gladly received :) Because we all deserve a better life..