Last March 2017, I was diagnosed with a very rare disease called Steven Johnson's Syndrome also known as SJS, At first I thought that it was only chickenpox because of watery blisters that appeared all over my body and I was also experiencing high fever, same symptoms with chickenpox. Few days later, I suddenly noticed my skin was peeling off and I was very dehydrated. Things got more awful that night when my whole body was like an open wound, my whole skin was gone all and I felt that I lost all the fluids inside my body because of severe dehydration. I can't also move my body, I can't even open my swollen mouth, i can't even open my eyes because of conjunctivitis which was also caused by this disease.
Below just to give you some knowledge about Steven Johnson's Syndrome (SJS)
Stevens-Johnson syndrome, also called SJS, is a rare but serious problem. Most often, it's a severe reaction to a medicine you've taken. It causes your skin to blister and peel off. It affects your mucus membranes, too. Blister also form inside your body, making it hard to eat, swallow, even pee.
Getting treated right away helps protect your skin and other organs from lasting damage.
SJS usually starts with a fever and feeling like you have the flu. A few days later, other symptoms appear, including:
- Painful red or purple skin that looks burned and peels off
- Blisters on your skin, mouth, nose, and genitals
- Red, painful, watery eyes.
SJS is dangerous. If you have these symptoms, go to the emergency room.
I am only 29 and I have so much to live but I still face challenges, right now I am confined and In reverse isolation but the treatment for this disease costs a fortune. I don't earn much as a College Instructor so I am seeking for your help and compassion for my full rehabilitation and recovery.
Jan Dominique (Sir Lapig) Lapig