1P36 Deletion is a rare chromosone disorder and effects 1 in every 10,000 babies. Each year the 1P36 UK & Ireland hold a conference and this year for the first time it is being held outside England and will be here in Belfast in August.
It's the first time most of children and families have been to Northern Ireland and I want to make sure they get a great welcome and don't have too many additional costs while they are here. Me and a group of family and friends are abseiling down the Europa Hotel on Sunday to raise money for the conference so if you would like to sponsor us we would be MOST GRATEFUL!!!