€203.00raised of €1,000.00 goal goal
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Verzi is a 4 year beautiful little boy from Petrich Bulgaria and his parents are pleading for the help of the the world. Anyone who is a parent knows that there can be nothing more unbearable than to watch the light of life inside your cold slowly fading and you are powerless to help them.
Verzi has a very rare disease called Subacute sclerosing panencephalitis (SSPE). The prognosis for this disease is not good and Verzi's only chance is for pioneering treatment is Turkey. The doctors have said they need him to be admitted to hospital by next Friday 3rd March 2023 and the family need to raise €36000 euros before then. They are doing very well with local community fund raiser and social media support but they are still short and are against the clock.
SSPE is a progressive neurological disorder of children and young adults that affects the central nervous system (CNS). It is a slow and persistent viral infection related to measles.
Most children with SSPE have a history of measles infection at an early age, usually younger than age 2, followed by a latent period of six to eight years before neurological symptoms begin. Why it persists and progresses still isn't clear.
The initial symptoms of SSPE are subtle and include the following:
Mild cognitive decline (such as memory loss)
Changes in behavior (such as irritability)
Disturbances in motor function, including uncontrollable jerking movements of the head, trunk or limbs called myoclonic jerks
Seizures may occur
Some people may go blind
In advanced stages of the disease, individuals may lose the ability to walk as their muscles stiffen or spasm. There is progressive deterioration to a comatose state, and then to a persistent vegetative state. Death is usually the result of fever, heart failure, or the brain's inability to continue controlling the autonomic nervous system.
Most individuals with SSPE will die within one to three years of diagnosis.
- Michaela Ripley
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