Help my darling Ayu beat cancer.

Ayu passed away
Update posted by Leigh Stokes On May 03, 2013

Thank you to everyone that helped us out.  Unfortunately Ayu passed away last week on the 23rd of April due to the underlying disease.   Please rest assured that your money helped to buy her comfort and the precious time she needed to see all of her loved ones.

Thank you and RIP my darling.

Leigh

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UPDATE #07
Update posted by Leigh Stokes On Feb 28, 2013

Sorry for not updating for a while, it's been very busy and the internet is not great here.

 

We are now back in Bali.  Ayu is still very weak but her general physical condition hasn't changed in the last few weeks.  She has good days and bad which is understandable given the terrible prognosis handed down. We've had her checked out at Siloam hospital and have been referred to a local well know oncologist Dr. Tjakra who has been dealing with cancer patients for many years and is considered one of the best here.  The doctors in Singapore recommended Chemotherapy using Cisplatin and Gemcitabine.  The doctor here suggest convinced us against using Cisplatin given her weak condition and it's terrible side effects.  He suggested to just go with Gemcitabine which isn't so heavy on the side effects and only administered to easy any suffering such as relieving the Ascites.  Once she decides that's what she wants to do we will get started.  She is also on various herbs and dietary suppliments which are supposed to help.

Thanks again to everyone for your support and donations, it's helped a lot.

Leigh

 

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UPDATE #06
Update posted by Leigh Stokes On Feb 13, 2013

UPDATE ON CINTYA'S CONDITION.
Today we had a meeting with the SGH team oncologist. Basically Cintya has an advanced primary bile duct cancer that is blocking the biliary tract. She also has several Metastases (cancer that has spread) in her abdominal wall causing excessive bloating (Ascites) and painful cramps. Our worse fears were confirmed, it is inoperable and she requires chemotherapy to manage the condition but not to cure it.  They gave us an estimate of 6-12 months to live with Chemo. Maybe less maybe more.  The cancer "Cholangiocarcinoma" as it is called, is very uncommon in someone Cintya's age. They said that it could have come from a liver fluke parasite which is common in south east asia.  These parasites usually come from contaminated water and seafood. 
We are going to head back to Bali ASAP so that she can be with her loved ones and go from there. I'll keep everyone updated as things progress or new information presents itself. 
Furthermore I'd like to take the time to thank everyone for their support over the last couple of months. All of your comments and prayers have helped us to stay strong and keep moving forward. I would also like to thank everyone that has donated to help us, it has been overwhelming and helped us a lot. We are still looking for support if you can give it. When I have the time I will write to each of you to say thank you in more detail.
Again I'd like to give a special thanks to Robyn-Lynn Wood for your support, research and behind the scenes help that you tirelessly did for us as well as a surprise visit with Cintya's sister Lia for Cintya's birthday.  Thank you to Tika Dewi for the additional support and translation when needed to Cintya's family, I know this has been hard on you too.  Thank you to the very special Yuni Putu who has been running the 'Island C' business since Cintya got very sick and couldn't work, she also helped with translation for difficult things and did lots of research and running around. Yuni, you are very special lady with a heart gold. I will be forever in your debt. Thank you to Anita Musa for letting Cintya's father and myself stay with you for a couple of weeks, you took away a large burden from my shoulders. I'm amazed how you put up with our snoring for so long. ...And last but not least thank you to Cinty's father Anwar for coming here to help over the last two weeks. Although she is your daughter and you wanted to be by her side, you also gave me the support and time that I needed to raise funds and have a beer.

Leigh

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UPDATE #05
Update posted by Leigh Stokes On Feb 10, 2013

We got some results back from the biopsies, they were not clear cut at this point but most likely point to an advanced primary Cholangiocarinoma of the bile duct and secondary metatisis in the abdomen wall. We have a meeting with the oncology team on Wednesday followed by a meeting with the head doctor on Thursday to discuss more specifics and treatment plan. She is currently taking a break from the hospital and we are staying in a local hotel close to the hospital as a precaution. As always, smiling away at every opportunity.

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UPDATE #04
Update posted by Leigh Stokes On Feb 06, 2013
Since the Endoscopy procedures it's been a bit quiet on the news front. She's had two tubes removed with 2 remaining. We are waiting for the biopsy culture results to come back before any more news can be given. Still another 4 days I'd say at this point. She's still smiling as usual but very weak and tired. I will update further as the results come in. Some of you have expressed concern about PayPal for donations. It's quite safe and you don't need a PayPal account. I'm still happy to provide direct bank account details for this in Aus and Indo upon request. Thank you for everyone's support it has been absolutely awesome! Regards, Leigh
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UPDATE #03
Update posted by Leigh Stokes On Feb 02, 2013

Hi everyone,

Cintya had a colonoscopy and gastroscopy this morning to examine things further.  Ayu seemed a bit more chirpy today and full of smiles.  She gets a bit uncomfortable at times from laying in the bed all day. Took her for another spin in the wheel chair and sat in the garden for a chat.  We now have to wait a week for all biopsy and scan results to be collated and a final diagnostic report done.  The waiting game begins again...

Another big thank you to all of you who pledged some more money today it's been very positive. 

Cheers


Leigh

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UPDATE #02
Update posted by Leigh Stokes On Feb 01, 2013

Hi everyone,

Cintya looked great today, her Jaundice was almost completely gone and she was happy and cheerful.  Still a bit sore and restless from the other day.  She had her second biopsy done today which wasn't as bad as she though it might be.  Tomorrow she's going for a colonoscopy...

Thanks again for everyones support.

Leigh

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UPDATE #01
Update posted by Leigh Stokes On Jan 31, 2013

What a great day!! Thank you very much to everyone that pledged their hard earned cash today it has and will be put to a good cause. We're off to a good start.  I will take the time to sit down and reply to each and every one of you the moment I get a chance.

Ayu had quite a restless day today, she's still very sore from yesterday but after a couple of Panadols her smiles return for a couple of hours.  There were no tests of procedures scheduled today so she could recover from yesterdays grueling PTC and biopsy procedures.  Tomorrow she has a biopsy scheduled to take a sample of the liver tumor.  It was supposed to be done yesterday but due to some bleeding difficulties it was aborted.

She's not so happy about going for round two so early, she feels very weak and wants an extra day to build her energy.  We'll discuss this tomorrow.

Thanks again everyone...

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Hi Ayu, Get well soon, and all the best for you and your family. Chris

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