Caring for Baby Miles
Fundraising campaign by
babymiles
-
CA$21,375Donated So Far
As written by the parents of this precious little life:
"The results from Miles catheter test yesterday were not what we had hoped for. The pictures revealed that the coronary arteries don't supply the back side of Miles heart. As a result, the planned surgeries to repair his heart are no longer an option.
Miles needs a heart transplant.
We are still processing what we've found out. Things almost seemed simple, or at least planned, and orderly before we found out that his heart couldn't be repaired. Our surgeons and cardiologists have been very honest with us, and we know the cards are not stacked in Miles favour. There are many complicating factors, including keeping Miles alive long enough to try and find the heart he needs.
A meeting is being held Monday morning between our health team and the hospital administration to advocate for our cause. Normally heart transplants like this one take place in Edmonton, although in a couple exceptional circumstances they have been performed here at BC Childrens Hospital, which has an incredibly capable, sought after and experienced team. Moving to Edmonton to wait for a heart would mean the literal end of our family financially, which we've accepted, but it would also place an incredible emotional burden on our family, especially on our precious 2 year old Noah, that right now seems unbearable."
July 16, 2013 Update:
Organizer
- babymiles
- Kelowna, CA
Donors
- Maddox, Noah & Tanya
- Donated on Dec 02, 2013
- BEARS MAMA
- Donated on Sep 20, 2013
To our littlest bear praying for a big win for you!!
September 14, 2013
Update posted by babymiles at 03:41 pmAnother week has gone by here with Mr. Miles. There was a time in this saga that our family thought we would only be in vancouver for a few weeks, or perhaps a month. That was in june. We've realized the trick, is to not anticipate the long term. It. . . . .
September 8, 2013
Update posted by babymiles at 01:58 pmIt's been a busy week of ups and downs for Miles. As of last thursday Miles was 8 weeks old. His weight is up to 3.245 Kg, and in our eyes he is becoming a big boy. He even seems borderline plump, although thats all in perspective. Miles "plump" is. . . . .
August 27, 2013
Update posted by babymiles at 05:19 pmIts been a few days since we have updated you all. Miles has been relatively the same. We had a nice weekend with visits from friends and family. On Monday Miles had his transplant blood work done. We asked for Miles anesthetist to come and do it because the lab. . . . .
August 27, 2013
Update posted by babymiles at 05:18 pmIts been a few days since we have updated you all. Miles has been relatively the same. We had a nice weekend with visits from friends and family. On Monday Miles had his transplant blood work done. We asked for Miles anesthetist to come and do it because the lab. . . . .
August 23, 2013
Update posted by babymiles at 05:17 pmYesterday was Miles 6 week birthday. Every week our little man proves once again that he is a fighter. Its nice when the docs come for rounds and don't even say anything medical about Miles. It means he's holding his own. It seems that the new main concern for the. . . . .
August 21, 2013
Update posted by babymiles at 05:17 pmToday was a good day. Miles was his normal happy self today. Last night however he was a bit of a grump. Also last night he had a few heart rate decelerations, and was unsettled enough that the nurses called the cardiologist. Fun fact about BCCH, there are always cardiologist. . . . .
August 19, 2013 - Part 2
Update posted by babymiles at 05:16 pmI almost forgot to add that Miles also had his weigh in today. Last Monday he weighed 2.78kg and stayed the same on thursday. Since Thursday he has gained, weighing in at 2.89kg's! It doesn't sound like much but for Miles every little bit counts!
August 19, 2013
Update posted by babymiles at 05:15 pmSo today was a busy day. This morning Miles had an echo, blood work, and a dressing change on his PICC line. We never got an hard numbers back from the echo but the tech said it looked good. His ductus and septum are open! The stent is holding and. . . . .
August 18, 2013
Update posted by babymiles at 05:14 pmMiles has had a good weekend. The last 48ish hours have been better then most of the past week. Little Mr. Miles has been able to keep almost all his food down. Tomorrow is weigh in and we will hopefully see an increase. We spent most the weekend visiting with. . . . .
July 30, 2013
Update posted by babymiles at 02:51 pm2 days have passed with Miles remaining mostly unchanged. One thing that is different is feeding time. Miles had a feeding tube, or an NG tube to be specific, placed in his nose and down his throat yesterday. The problem is that little Mr. Miles is still at his birth. . . . .
Donors & Comments
- Hami Dywa
- Posted On Aug 11, 2019
1
- Maddox, Noah & Tanya
- Donated on Dec 02, 2013
- BEARS MAMA
- Donated on Sep 20, 2013
To our littlest bear praying for a big win for you!!
- Karen & Scott Finlayson
- Donated on Sep 15, 2013
We have been following your journey since the start and are sending positive thoughts your way from Penticton.
- Dennis Grant
- Donated on Aug 28, 2013
- Guest
- Donated on Aug 26, 2013
Keep fighting Miles! Our thoughts and prayers are with you and your family.
- Guest
- Donated on Aug 22, 2013
- Jessica & Christian
- Donated on Aug 20, 2013
Stay strong. My thoughts and prayers are with you, your family and baby Miles
- Faubert Family, kelowna BC
- Donated on Aug 14, 2013
- Guest
- Donated on Aug 09, 2013
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