Aug 28, 2013 at 05:17 pm
August 21, 2013
Update posted by babymilesToday was a good day. Miles was his normal happy self today. Last night however he was a bit of a grump. Also last night he had a few heart rate decelerations, and was unsettled enough that the nurses called the cardiologist. Fun fact about BCCH, there are always cardiologist fellows sleeping here over night. So no matter what obscene hour of the night it may be, a frizzy haired doctor is only minutes away. The doctor wasn't overly concerned though, and there wasn't much they could do. He was just being a fussy baby I suppose. Sam and I have had some nice visits the past few days. We've seen all sorts of friends from near and far including Kirstin Grant,Michelle Spletzer Van Dolder and Stephen VanDolder, Laurie McNaught and Jenna Rae McNaught, and today Elaine Yong and her wonderful family . I even had a nice surprise talk with Brennan Garrecht who popped by at Nanny and Pas house and played with Noah. It's so nice seeing friends, and even jus...t talking to them to break up what has become a routine of long days spent in the hospital. A big thanks tonight to the Bears football team at MBSS in west kelowna. The young men on that team, along with their families took it upon themselves to help raise funds to support our family. You're another bunch of heroes Miles will one day get to hear about. It's so overwhelming, to be propped up by people in our community, and even strangers from our online community. I don't know what our family ever did to deserve so much love. Our lives will be spent passing it on. At Miles 8pm feed tonight I had a moment. Sam has been in bed since 7pm, and I hope somehow she can get some sleep. Miles has had as good a day as we can ask for all things considered, and when he was sitting in my lap tonight, being burped I closed my eyes. I could almost imagine for an instant that we were at home, and that for a few quiet seconds, I was in my own living room, with my family. The quiet never lasts long, and after a few seconds somewhere an alarm started complaining for attention and I was brought back to reality. We miss "normal life" so much. We miss home and we miss all of you. Please pray for our family, for Sam that she would have strength, for Noah that he would be resilient and protected, for Miles that he can get his heart and know health, and for me, patience. Thanks for the support, we would be lost without it.See More